ADVERTISEMENT
A girl from Russia named Darina Spengler became famous all over the world after the story of her life and deformity became public. Namely, this 11-year-old girl was born, as the media wrote, “without half her face” – but in fact she had no chin and no lips.
Her mother Elena fainted when she first saw her in the incubator, and for years her daughter was the subject of ridicule and disparaging comments.
The girl was never officially diagnosed, but it is believed that the facial malformation is the result of the rare Nager syndrome. All this made her daily life extremely difficult. Because of the deformity, she could not speak, she could not feed herself. Her parents had to completely change their lives in order to devote themselves entirely to her, to raise her, educate her and keep her alive – because, unfortunately, she could hardly do anything on her own. Fortunately, fate smiled on them, allowing Darina to smile too.
Elena with her daughter Darina Photo: The Siberian Times / Profimedia
ADVERTISEMENT